My editorial was published! I didn't recognize it because it had a different title and it appeared as a skinny little column but it was front and ceter on page A9. The only problem was that it was supposed to be taken as a role reversal, instead people took it as a cry for pity. One man said how sorry he felt for me. However 2 other people with challenges contacted me and I have a very good feeling about the second man. I also sent letters to Senator Brubaker and Representatve Sturla's office and requesting that I continue my advocacy project there. It would hold much more weight if I got their stamp of approval than if I did it alone. I was/am determined to develop this advocacy project regardless and now I am confident that I can/will.

My advocacy project is likely to happen even though it is without agency support. Originally it was supposed to be part of a grant through the Pennsylvania Developmental Disability Planning Council. I wrote to a number of agencies requesting that they work with me and in retun they would receive the money.

The deadline came and went and there were no takers. However, that did not mean the project would die. I made some changes and decided to do it myself eventually I'd find people with disabilities who may be willing to join me. I just wrote a letter to Senator Brubaker requesting that I develop the project through his office. That would lend a major amount of credibility to the project and to myself. Hopefully it will be worth the wait.

Advocacy is so important and not enough people do it so I am going ahead with my work whether I have an agency backing me for the grant or not. I tried Liberty Resources and the CIL in Bucks County and now I'm trying the one called Visions for Equality in Philly. I need consumers who are willing to share their stories about how their lives affected by fewer hours of attendant care. I also want to learn about the accessibility of polling places in Pennsylania.

Window Shopping on Wheels

I created a perfectly good solution. It would show people with disabilities that the shop owners care and hopefully turn them into customers. I called the Chamber of Commerce in Lancaster, City Hall, WGAL and the Intellligencer. No one seemed to care at all but since it's warmer out today, I will go to a business today in person. I can't imagine store owners would want the chance to increase their revenues, my idea costs almost nothing.

I would create a webpage that would include shot summaries on the inaccessible stores with their indiidual websites. Once I meet with a dozen stores and get them interested the cost of the webpage would be almost nothing. Furthermore, I would do all the initial marketing so it would be hassle free for them and more than likely increase their revenue. I know places waste thousands of dollars on unsuccessful marketing techniques so I can't imagine there would be nobody interested.

Once I get my project going I will ask a store owner, to contact the media and get this idea to spread. I probably won't have to ask, they'll do it on their own. Not only will I do this all on my own but with resistance from the media. New Approach!

Window Shopping on Wheels

Last week my friend suggested they enjoy downtown's "First Friday" activities. Since the weather was so mild and had never roamed around since just moving here in July, I was eager for the experience. Well after a few minutes my eagerness turned to disappointment. Not because I didn't like the things I saw in the stores but because I couldn't get in the store so I couldn't see much of anything that was beyond the windows. I use a motorized wheelchair to get around. Even though I am quick to assure people that I can find ways to keep the wheelchair from getting in the way, this doesn't work when faced with steps.

Although the Americans with Disabilities Act was enacted twenty - two years ago, and that's supposed to ensure that public places are accessible to people who use wheelchairs, but that is not always the answer. In today's economy cost is the bottom line and people think it is too costly to do that and if the building was built prior to the law or the business is so small that it would cause an "undue hardship" (i.e too costly) the ADA says that is an acceptable reason to leave things as they are. Business owners often hide behind these exceptions to the rule. This is unfortunate because they could increase their revenues- people with disabilities are customers too. There is a flip side to the issue.

The flip side is that people with disabilities have money to spend that is just as good as that of the customers who walk it inside the stores and some store owners find ways to accommodate. The one store Susan did enter was "Mommalicious." Once she got help to lift her chair inside, Alicia Byler, the owner apologized for the entrance and asked her if I'd like to use her portable ramp when I am ready to leave. I would never have known this had I not made the effort to get inside. I believes that many employers want to accommodate but do not know how or feel threatened by the law. The way one approach I have is to start a dialog with business owners, at a convenient time and in a neutral location of their choice, to find out what their needs actually are. I want to publish a one page website summarizing the businesses and giving their own websites. Once that happens and you show your efforts to these businesses, people with disabilities who would not normally look twice, just may become customers.

Voices of Disability

Instead of just hearing about the problems the disability population has had and will continue to have I'm going to be part of the solution. When I heard these 2 facts I decided it was time to take some action so I'll no longer be at this location, please use www.voicesofdisability.blogspot.com

1) 113,000 people were cut from medical assistance in Pennsylvania. Why did this happen? It was because the government wanted to show they are clamping down on fraud. In reality, those cuts were made arbitrarily so they committed fraud. There was no case examination to detrmine that those people no longer required assistance.

2) 16,000 people are on waiting lists for some type of services. The list grows annually because every year 700 additional kids graduate from public schools only to sit home, watch television, and let their skills regress.

I'll be compiling stories of families and individuals who have experienced these types of situations. I will be developing a video of these people also. If you or someone you know wants to participate in this project please let me know. < is one place that you can write your story. You are also encouraged to contact me at 13suewheels@gmail.com

I was at an event called " Disability Networking " and I'm really quite inspired. We talked alot about how to strengthen our advocacy efforts and the movement as a whole. There was a move to combine our efforts and be more proactive in making things happen. I offered to compile stories from the thousands of people taken off medicaid to show how inequitable the system is. As far as taking what I learned back with me I'm not sure I can since my area is not likely to work together.